Annual Information Statement 2019

Legal Name

About the charity

Charity size
Fundraising online
Is the charity an incorporated association?
Select the state/territory and enter the incorporated association number
VIC incorporated association number: A0062680W
Does the charity intend to fundraise in the next reporting period?
Basic Religious Charity

Activities and Beneficiaries

Did the charity operate in the 2019 reporting period?
Main activity
Civic and advocacy activities
Description of charity's activities and outcomes
2018-2019 has continued to see AusPIPS move quickly and firmly onwards in all aspects and thousands of Australians have now benefitted from our hard work. We continue to work with Australian Governments and Government bodies around Australia in relation to the SCIg project and other projects which will help to improve the lives of people with Primary Immunodeficiency in Australia.

The SCIg project continues to move forward, Victoria in the lead but NSW has now firmed its commitment and its plans will see SCIg offered at every hospital in NSW, where there is demand, at only a small cost. For patients this effectively means that from the patient perspective Victoria and NSW will be 99%.

We engaged with Health in May and Canberra Hospital, who have been training a number of patients from the ACT and surrounds to do SCIg.

We met with the Northern Territory Health Ministers office and there is now positive movement towards offering SCIg at the Royal Darwin Hospital.

We received acknowledgment and thanks from National Blood Authority Board. AusPIPS is now recognised as a very highly regarded stakeholder in the Australian Blood Sector.

We attended the initial meeting of the National Immunodeficiency Strategy and we are now looking forward to seeing where it goes after the consultation is finished. We hope that it will stay on track and benefit all with Primary Immunodeficiency in Australasia.

ASCIA was once again very beneficial for AusPIPS, it helps us to engage with Health Care Professionals and other relevant stakeholders – it’s also good to meet with other charities. After conversations we are now going to work more closely with the Immune Deficiency Foundation of New Zealand (IDFNZ).
Where the charity conducted activities during the 2019 reporting period
  • Australian Capital Territory
  • New South Wales
  • Northern Territory
  • Queensland
  • South Australia
  • Tasmania
  • Victoria
  • Western Australia
Will the charity change or introduce any activities in the 2020 period?
Main beneficiary
People with chronic illness (including terminal illness)

Annual report

Note: If you want to see the financial report or annual report that this charity has submitted, go back to Financials & Documents.

Human Resources

Human resources
  • Full time employees: 0
  • Part time employees: 0
  • Casual employees: 0
  • Full-time equivalent staff (FTE): 0
  • Estimated number of volunteers: 6

Financial Reporting

Charity's 2019 reporting period
1 August 2018 to 31 July 2019
Accounting method used in the 2019 reporting period

Income and Expenses

Income Statement summary

Donations and bequests
Revenue from providing goods or services
Revenue from government including grants
Revenue from investments
Other revenue/receipts
Total revenue/receipts
Other income (for example, gains)
Total income/receipts
Employee expenses/payments
Grants and donations made for use in Australia
Grants and donations made for use outside Australia
Other expenses/payments
Total expenses/payments
Net surplus/(deficit)

Balance Sheet Extract

Total assets
Total liabilities
Net assets/liabilites