Annual Information Statement 2017

Legal Name

Section A: Charity Information

Charity size
Fundraising online
Basic Religious Charity

Section B: Activities

Did the charity operate in the 2017 reporting period?
Main activity
Advocacy and civic activities
Description of charity's activities and outcomes
1. We have been working as an advocate with key relevant stakeholders for the past year to make SCIg (subcutaneous immunoglobulin infusions which are done at home by the patient) a viable option for people with PID who qualify under the Australian IVIg (intravenous immunoglobulin) criteria and are medically viable vs. having IVIg treatment in hospital on a frequent basis on average every 21-28 days. In the past 12 months we have been a major role player to seeing SCIg from only being available (outside of trial) to children with PID in Victoria to now being fully funded by the Victorian state government for all Victorians in the Victorian public health system and at the same time seeing private hospitals also starting to work towards providing SCIg as an option to people with PID who are treated in the private system. SCIg has major benefits for those who need immunoglobulin replacement therapy as it usually provides a better quality of life, with fewer break through infections and much fewer hospital admissions as treatment is done at home by people with PID. Note that all Victorians with Immune Deficiencies are benefitting from these changes.2. We have also been offering advocacy to those who have negative experiences in the health system and in the community, where we have acted as an advocate contacting relevant stakeholders and asking that such situations are resolved. This also helps improve quality of life for people with PID, their partners and parents of children who have PID and makes life less stressful too.3. We also have been providing one on one emotional support, including support for those who lose loved ones who have had PID.4. We have continued to network and build relationships with relevant stakeholders in doing so this will enable us to advocate effectively to bring about positive change for people with PID in Australia.5. We now have a public platform so we are easy to engage with.
Main beneficiary
People with disabilities
Other beneficiaries
People with chronic illness (including terminal illness)
Where the charity conducted activities during the 2017 reporting period
  • Australian Capital Territory
  • New South Wales
  • Northern Territory
  • Queensland
  • South Australia
  • Tasmania
  • Victoria
  • Western Australia
Will the charity change or introduce any activities in the 2018 period?

Section C: Human Resources

Human resources
  • Full time employees: 0
  • Part time employees: 0
  • Casual employees: 0
  • Full-time equivalent staff (FTE): 0
  • Estimated number of volunteers: 7

Section D: Finance

Charity's 2017 reporting period
1 August 2016 to 31 July 2017
Accounting method used in the 2017 reporting period

Income Statement summary

Donations and bequests
Revenue from providing goods or services
Revenue from government including grants
Revenue from investments
Other revenue/receipts
Total revenue/receipts
Other income (for example, gains)
Total income/receipts
Employee expenses/payments
Grants and donations made for use in Australia
Grants and donations made for use outside Australia
Other expenses/payments
Total expenses/payments
Net surplus/(deficit)

Balance Sheet Extract

Total assets
Total liabilities
Net assets/liabilites

Section E: Annual report

Note: If you want to see the financial report or annual report that this charity has submitted, go back to Financials & Documents.

Section F: Reporting to state or territory regulators

Is the charity an incorporated association?
Select the state/territory and enter the incorporated association number
VIC incorporated association number: A0062680W
Does the charity intend to fundraise in the next reporting period?