Annual Information Statement 2019

Legal Name
Australian Leukodystrophy Support Group Inc.

About the charity

Other names charity is known by (such as trading name)
  • Leukodystrophy Australia,
  • , pre 2015 ALDS
Charity size
Is the charity an incorporated association?
Select the state/territory and enter the incorporated association number
VIC incorporated association number: A0031793T
Does the charity intend to fundraise in the next reporting period?
Basic Religious Charity

Activities and Beneficiaries

Did the charity operate in the 2019 reporting period?
Main activity
Other health service delivery
Main activities
  • Health, disability, social work
Description of charity's activities and outcomes
We support our members, nationally, urban, rural and regional, with empowerment throughout their Leukodystrophy journey, from pre diagnosis and beyond. We offer support by fostering member connections, providing service linkages, education, advocacy, crisis support, promoting current trends in treatments and research.

Our holistic approach improves well-being of the diagnosed person, families and carers, by empowering their decision making in life and health, across multiple stakeholders. Friendship opportunities, majorly, and importantly, reduces the often overwhelming sense of isolation and anguish. Leukodystrophy Australia offers time, comfort, practical support.
Where the charity conducted activities during the 2019 reporting period
  • Australian Capital Territory
  • New South Wales
  • Northern Territory
  • Queensland
  • South Australia
  • Tasmania
  • Victoria
  • Western Australia
Will the charity change or introduce any activities in the 2020 period?
Main beneficiary
People with disabilities
Other beneficiaries
  • General community within Australia
  • Families
  • People with chronic illness (including terminal illness)
  • Other
    • Medical and research professionals - local and global. Allied health services, schools, policy makers.

Annual report

Note: If you want to see the financial report or annual report that this charity has submitted, go back to Financials & Documents.

Human Resources

Human resources
  • Full time employees: 0
  • Part time employees: 2
  • Casual employees: 0
  • Full-time equivalent staff (FTE): 1.47
  • Estimated number of volunteers: 6

Financial Reporting

Charity's 2019 reporting period
1 July 2018 to 30 June 2019
Accounting method used in the 2019 reporting period

Income and Expenses

Income Statement summary

Donations and bequests
Revenue from providing goods or services
Revenue from government including grants
Revenue from investments
Other revenue/receipts
Total revenue/receipts
Other income (for example, gains)
Total income/receipts
Employee expenses/payments
Grants and donations made for use in Australia
Grants and donations made for use outside Australia
Other expenses/payments
Total expenses/payments
Net surplus/(deficit)

Balance Sheet Extract

Total assets
Total liabilities
Net assets/liabilites