Annual Information Statement 2015

Legal Name
Australian Leukodystrophy Support Group Inc.

Section A: Charity Information

Other names charity is known by (such as trading name)
  • Leukodystrophy Australia,
  • , pre 2015 ALDS
Charity size
Basic Religious Charity

Section B: Activities

Activities in the 2015 reporting period
Main activity
Other health service delivery
General activities
  • Civic and advocacy activities
  • Emergency and relief
  • Income support and maintenance
  • Mental health and crisis intervention
  • Research
  • Other recreation and social club activity
Description of charity’s activities and outcomes
Supporting Our FamiliesALDS is aware of nearly 250 families or individuals affected by a leukodystrophy across Australia.During 2012/2013 we provided assistance to families via information for those newly diagnosed; emotional support; advocacy to assist connection with relevant services; equipment and aids; direct financial support where possible; and, through volunteers, counselling and peer support.Raising AwarenessAs leukodystrophy remains an under-diagnosed and misunderstood condition, ALDS is committed to raising awareness of the condition.To do this, we have maintained a website and Facebook presence; we held a 20th Anniversary Conference; we continued to publish a quarterly Newsletter with a circulation of approximately 500; we conducted or participated in various fundraising events; and have provided guest speakers for presentations, where members of ALDS have related their personal stories.Encouraging ResearchALDS contributes to research into leukodystrophy (and its effects) where funds and opportunity allow.During the year, ALDS established a close connection with UNSWs Dr Matthias Klugmann, whose work includes gene therapy research into the leukodystrophies; we provided placements for students undertaking relevant courses at various universities; and we initiated a Clinicians and Researcher Network (Leukodystrophy and Leukoencephalopathy) network, comprising doctors and scientists in 5 states.
Changing or introducing activities in the next reporting period
Beneficiaries helped by charity’s activities in the 2015 reporting period
  • General community in Australia
  • Women
  • Men
  • Children – under 13
  • Youth – 13 to under 25
  • Adults – 25 to under 60
  • Elderly – 60 and over
  • All ages
  • People with disabilities
  • People with Chronic or terminal illness
  • Unemployed persons

Section C: Resources and operating locations

Estimated number of unpaid volunteers who worked for the charity during the 2015 reporting period
  • Full time employees: 0
  • Part time employees: 2
  • Casual employees: 0
  • Volunteers: 10
Where the charity operated during the 2015 reporting period
  • Australian Capital Territory
  • New South Wales
  • Northern Territory
  • Queensland
  • South Australia
  • Tasmania
  • Victoria
  • Western Australia

Section D: Reporting and regulatory obligations (This section is optional)

Commonwealth department /(s) and/or agency/agencies charity had to report to over the 2015 reporting period, excluding the ATO and ACNC

Approximate hours spent reporting by paid staff
Approximate hours spent reporting by unpaid volunteers
Total hours spent reporting

Section E: Financial information

Charity's 2015 reporting period
1 July 2014 to 30 June 2015
Financial report submitted to a state/territory regulator?
2015 Financial report
Note: If you want to see the financial report or annual report that this charity has submitted, go back to Financials & Documents.
State or territory of the regulator where financial report was submitted

Income and Expenses

Income Statement

Donations and bequests
Government grants
Other revenue/receipts
Total revenue/receipts
Employee expenses/payments
Grants and donations made for use in Australia
Grants and donations made for use outside Australia
Other expenses/payments
Total expenses/payments
Net surplus/(deficit)

Balance Sheet Extract

Total assets
Total liabilities
Net assets/liabilites

Section F: Other obligations

Governing document on the ACNC register current and accurate
Responsible persons' details on the ACNC register complete, current and accurate
Subtypes current and accurate