Annual Information Statement 2017
Me/Cfs Australia Ltd
Section A: Charity Information
Other names charity is known by (such as trading name):
ME/Chronic Fatigue Syndrome Association of Australia Limited
Basic Religious Charity:
Section B: Activities
Did the charity operate in the 2017 reporting period?
Advocacy and civic activities
- planning and re-development of the organisation, continuing to collaborate with individuals and organised patient support organisations with advocacy submissions, liaising with state and territory-based ME/CFS support organisations with a view to strengthening administration, coordination and service provision in cooperation with ME/CFS Australia Ltd
Description of charity's activities and outcomes:
Following the distribution of funds by our organisation to the ME/CFS & Lyme Association of WA and Bridges and Pathways (South Australia), both organisations were able to deliver their projects with thefunds of the bequest from the Estate of the Late Lucie Hall. Emerge Australias project to provide continuingeducation for GPs focused on ME/CFS (including webinars and videos) was incomplete at the end of the2016/2017 financial year.Much of the year was devoted to the planning and redevelopment of the company, as well as the recruitment ofa skills based board. Various funding options were explored and a concerted effort was placed intoidentification of grants and grant writing to no avail. Government funding has been difficult to obtain followingthe Federal Governments changes to policy and the introduction of a project based funding system in New SouthWales. A business plan was drafted, outlining the future goals and strategies of the company so that it can bestunderstand and meet the needs and expectations of the ME/CFS community and member societies.Members of the company attended a meeting in Melbourne, organised by Nous and funded by the MasonFoundation. The meeting was centered on the creation of a biobank for blood and tissue from ME/CFSsufferers. The day was an interesting discussion between patient advocates, researchers, medical personneland other interested parties. We still await the outcome of the discussions.The company at times joined with the state organisations, social media groups and Emerge to progress advocacyand improvement government funding of ME/CFS research. It should be notes that thanks to the efforts of theSouth Australian Society, the NHMRC agreed to create an ME/CFS committee and work towards a targetedcall for research valued at $ 5 million the most significant development in many years. The various memberorganisations also petitioned Greens Senator, Scott Ludlam, to ask various questions of the NHMRC before theSenate Estimates Committee. Emerge played a significant role in such questioning as well.
General community in Australia
- People in rural/regional/remote communities
- Financially disadvantaged people
- People with chronic illness (including terminal illness)
- People with disabilities
Did the charity provide funded support and/or services to participants of the National Disability Insurance Scheme in the 2017 reporting period?
Does the charity intend to provide funded support and/or services to participants of the National Disability Insurance Scheme in the next reporting period?
Where the charity conducted activities during the 2017 reporting period:
- Australian Capital Territory
- New South Wales
- Northern Territory
- South Australia
- Western Australia
Will the charity change or introduce any activities in the 2018 period?
Section C: Human Resources
- Full time employees: 0
- Part time employees: 0
- Casual employees: 0
- Full-time equivalent staff (FTE): 0
- Estimated number of volunteers: 13
Section D: Finance
Charity's 2017 reporting period:
1 July 2016 to 30 June 2017
Accounting method used in the 2017 reporting period:
Income Statement summary
Donations and bequests:
Revenue from providing goods or services:
Revenue from government including grants:
Revenue from investments:
Other income (for example, gains):
Grants and donations made for use in Australia:
Grants and donations made for use outside Australia:
Balance Sheet Extract
Section E: Annual report
Section F: Reporting to state or territory regulators
Is the charity an incorporated association?
Does the charity intend to fundraise in the next reporting period?