Annual Information Statement 2017

Legal Name
Me/Cfs Australia Ltd

Section A: Charity Information

Charity size
Basic Religious Charity

Section B: Activities

Did the charity operate in the 2017 reporting period?
Main activity
Advocacy and civic activities
Main activities
  • planning and re-development of the organisation, continuing to collaborate with individuals and organised patient support organisations with advocacy submissions, liaising with state and territory-based ME/CFS support organisations with a view to strengthening administration, coordination and service provision in cooperation with ME/CFS Australia Ltd
Description of charity's activities and outcomes
Following the distribution of funds by our organisation to the ME/CFS & Lyme Association of WA and Bridges and Pathways (South Australia), both organisations were able to deliver their projects with thefunds of the bequest from the Estate of the Late Lucie Hall. Emerge Australias project to provide continuingeducation for GPs focused on ME/CFS (including webinars and videos) was incomplete at the end of the2016/2017 financial year.Much of the year was devoted to the planning and redevelopment of the company, as well as the recruitment ofa skills based board. Various funding options were explored and a concerted effort was placed intoidentification of grants and grant writing to no avail. Government funding has been difficult to obtain followingthe Federal Governments changes to policy and the introduction of a project based funding system in New SouthWales. A business plan was drafted, outlining the future goals and strategies of the company so that it can bestunderstand and meet the needs and expectations of the ME/CFS community and member societies.Members of the company attended a meeting in Melbourne, organised by Nous and funded by the MasonFoundation. The meeting was centered on the creation of a biobank for blood and tissue from ME/CFSsufferers. The day was an interesting discussion between patient advocates, researchers, medical personneland other interested parties. We still await the outcome of the discussions.The company at times joined with the state organisations, social media groups and Emerge to progress advocacyand improvement government funding of ME/CFS research. It should be notes that thanks to the efforts of theSouth Australian Society, the NHMRC agreed to create an ME/CFS committee and work towards a targetedcall for research valued at $ 5 million the most significant development in many years. The various memberorganisations also petitioned Greens Senator, Scott Ludlam, to ask various questions of the NHMRC before theSenate Estimates Committee. Emerge played a significant role in such questioning as well.
Main beneficiary
General community in Australia
Other beneficiaries
  • People in rural/regional/remote communities
  • Financially disadvantaged people
  • People with chronic illness (including terminal illness)
  • People with disabilities
Did the charity provide funded support and/or services to participants of the National Disability Insurance Scheme in the 2017 reporting period?
Does the charity intend to provide funded support and/or services to participants of the National Disability Insurance Scheme in the next reporting period?
Where the charity conducted activities during the 2017 reporting period
  • Australian Capital Territory
  • New South Wales
  • Northern Territory
  • Queensland
  • South Australia
  • Tasmania
  • Victoria
  • Western Australia
Will the charity change or introduce any activities in the 2018 period?

Section C: Human Resources

Human resources
  • Full time employees: 0
  • Part time employees: 0
  • Casual employees: 0
  • Full-time equivalent staff (FTE): 0
  • Estimated number of volunteers: 13

Section D: Finance

Charity's 2017 reporting period
1 July 2016 to 30 June 2017
Accounting method used in the 2017 reporting period

Income Statement summary

Donations and bequests
Revenue from providing goods or services
Revenue from government including grants
Revenue from investments
Other revenue/receipts
Total revenue/receipts
Other income (for example, gains)
Total income/receipts
Employee expenses/payments
Grants and donations made for use in Australia
Grants and donations made for use outside Australia
Other expenses/payments
Total expenses/payments
Net surplus/(deficit)

Balance Sheet Extract

Total assets
Total liabilities
Net assets/liabilites

Section E: Annual report

Note: If you want to see the financial report or annual report that this charity has submitted, go back to Financials & Documents.

Section F: Reporting to state or territory regulators

Is the charity an incorporated association?
Does the charity intend to fundraise in the next reporting period?