Annual Information Statement 2016
The Immune Deficiency Foundation Of Australia Limited
Section A: Charity Information
Basic Religious Charity:
Section B: Activities
Did the charity operate in the 2016 reporting period?
Advocacy and civic activities
- Grant-making activities
- Social services
- Other health service delivery
- Social Services, Patient advocacy, Patient education, Patient support, Fundraising, Strategic Planning,
Estimated percentage of charity's grant funding that was:
Granted through a public or open application process, or similar: 100%
Description of charity's activities and outcomes:
The Immune Deficiencies Foundation Australia (IDFA) is the peak patient body representing people affected by primary immune deficiencies in Australia. IDFAs Mission is To promote an understanding of Primary Immune Deficiencies; link members, their families and medical professionals; and advocate for a better quality of life. We achieve this by: 1. Providing education and raising awareness of primary immune deficiencies within both the general and medical communities 2. Providing education, resources, practical advice and emotional support for those with PID, their carers and families 3. Bringing the PID community in Australia together through social media, teleconferencing, patient meetings, events and conferences 4. Advocating for our members to ensure accurate diagnosis and optimal treatment to provide a better quality of life. Our key achievements in 2015-2016 have included: 1. Continuing to increase membership 2. Developing our own IDFA pamphlet on Fatigue 3. Printing more resources for GPs to be included in our Healthcare Professional information pack 4. Continuing to build a fundraising volunteer base to assist our sustainability 5. Increasing donations. IDFA is continuing to advocate for: 1. patient choice and availability of product for SCIg (subcutaneous Immunoglobulin treatment) 2. Newborn screening for SCID (Severe Combined Immune Deficiency, also known as the bubble boy disease) as babies in Australia are still dying from this primary immune deficiency.
Will the charity change or introduce any activities in the 2017 period?
Where the charity conducted activities during the 2016 reporting period:
- Australian Capital Territory
- New South Wales
- Northern Territory
- South Australia
- Western Australia
Who was helped most by the charity's activities in the reporting period:
- People with chronic illness (including terminal illness)
- People with disabilities
Did the charity provide funded support and/or services to participants of the National Disability Insurance Scheme in the 2016 reporting period?
Does the charity intend to provide funded support and/or services to participants of the National Disability Insurance Scheme in the next reporting period?
Section C: Human Resources
- Full time employees: 1
- Part time employees: 2
- Estimated number of volunteers: 15
Section D: Finance
Type of financial statement:
General purpose financial statements
Financial report consolidated with more than one entity?
Did your charity have any related party transactions?
Does your charity have documented policies or processes about related party transactions?
Charity's 2016 reporting period:
1 July 2015 to 30 June 2016
Financial report submitted to a state/territory regulator?
2016 Financial report:
Note: If you want to see the financial report or annual report that this charity has submitted, go back to Financials & Documents.
State or territory of the regulator where financial report was submitted:
Income and Expenses
Comprehensive Income Statement summary
Donations and bequests:
Revenue from government including grants:
All other revenue:
Other income (for example, gains):
Total gross income:
Grants and donations made for use in Australia:
Grants and donations made for use outside Australia:
All other expenses:
Other comprehensive income:
Total comprehensive income:
Balance Sheet extract
Total current assets:
Non-current loans receivable:
Other non-current assets:
Total non-current assets:
Total current liabilities:
Non-current loans payable:
Other non-current liabilities:
Total non-current liabilities: