Annual Information Statement 2016

Legal Name
The Immune Deficiency Foundation Of Australia Limited

Section A: Charity Information

Charity size
Basic Religious Charity

Section B: Activities

Did the charity operate in the 2016 reporting period?
Main activity
Advocacy and civic activities
Main activities
  • Grant-making activities
  • Social services
  • Other health service delivery
  • Other
    • Social Services, Patient advocacy, Patient education, Patient support, Fundraising, Strategic Planning,
Estimated percentage of charity's grant funding that was
Granted through a public or open application process, or similar: 100%
Description of charity's activities and outcomes
The Immune Deficiencies Foundation Australia (IDFA) is the peak patient body representing people affected by primary immune deficiencies in Australia. IDFAs Mission is To promote an understanding of Primary Immune Deficiencies; link members, their families and medical professionals; and advocate for a better quality of life. We achieve this by: 1. Providing education and raising awareness of primary immune deficiencies within both the general and medical communities 2. Providing education, resources, practical advice and emotional support for those with PID, their carers and families 3. Bringing the PID community in Australia together through social media, teleconferencing, patient meetings, events and conferences 4. Advocating for our members to ensure accurate diagnosis and optimal treatment to provide a better quality of life. Our key achievements in 2015-2016 have included: 1. Continuing to increase membership 2. Developing our own IDFA pamphlet on Fatigue 3. Printing more resources for GPs to be included in our Healthcare Professional information pack 4. Continuing to build a fundraising volunteer base to assist our sustainability 5. Increasing donations. IDFA is continuing to advocate for: 1. patient choice and availability of product for SCIg (subcutaneous Immunoglobulin treatment) 2. Newborn screening for SCID (Severe Combined Immune Deficiency, also known as the bubble boy disease) as babies in Australia are still dying from this primary immune deficiency.
Will the charity change or introduce any activities in the 2017 period?
Where the charity conducted activities during the 2016 reporting period
  • Australian Capital Territory
  • New South Wales
  • Northern Territory
  • Queensland
  • South Australia
  • Tasmania
  • Victoria
  • Western Australia
Who was helped most by the charity's activities in the reporting period
  • People with chronic illness (including terminal illness)
  • People with disabilities
Did the charity provide funded support and/or services to participants of the National Disability Insurance Scheme in the 2016 reporting period?
Does the charity intend to provide funded support and/or services to participants of the National Disability Insurance Scheme in the next reporting period?

Section C: Human Resources

Human resources
  • Full time employees: 1
  • Part time employees: 2
  • Estimated number of volunteers: 15

Section D: Finance

Type of financial statement
General purpose financial statements
Financial report consolidated with more than one entity?
Did your charity have any related party transactions?
Does your charity have documented policies or processes about related party transactions?
Charity's 2016 reporting period
1 July 2015 to 30 June 2016
Financial report submitted to a state/territory regulator?
2016 Financial report
Note: If you want to see the financial report or annual report that this charity has submitted, go back to Financials & Documents.
State or territory of the regulator where financial report was submitted
  • Queensland
  • Victoria

Income and Expenses

Comprehensive Income Statement summary

Gross Income
Donations and bequests
Revenue from government including grants
All other revenue
Total revenue
Other income (for example, gains)
Total gross income
Employee expenses
Interest expenses
Grants and donations made for use in Australia
Grants and donations made for use outside Australia
All other expenses
Total expenses
Net surplus/(deficit)
Other comprehensive income
Total comprehensive income

Balance Sheet extract

Total current assets
Non-current loans receivable
Other non-current assets
Total non-current assets
Total assets
Total current liabilities
Non-current loans payable
Other non-current liabilities
Total non-current liabilities
Total liabilities
Net assets/liabilities