Annual Information Statement 2018

Legal Name
Thalassaemia & Sickle Cell Australia

About the charity

Other names charity is known by (such as trading name)
  • Thalassaemia Australia Inc
  • Thalassaemia and Sickle Cell Society of Australia
  • Thalassaemia and Sickle Cell Australia
Charity size
Is the charity an incorporated association?
Select the state/territory and enter the incorporated association number
VIC incorporated association number: A0029201F
Does the charity intend to fundraise in the next reporting period?
Basic Religious Charity

Activities and Beneficiaries

Did the charity operate in the 2018 reporting period?
Main activity
Other health service delivery
Main activities
Advocacy and civic activities
Description of charity's activities and outcomes
Presentations made to secondary aged students, as well as various culturally and linguistically diverse community groups, raised awareness of the existence of haemoglobinopathies such as thalassaemia and sickle cell anaemia. The impact of the these conditions was highlighted to encourage awareness of one's carrier status. The importance of blood donation was also emphasised.

Liaising with hospitals and advocating on behalf of patients ensured that the health and well-being of individuals affected by haemoglobinopathies would remain a priority for medical professionals.
Where the charity conducted activities during the 2018 reporting period
Will the charity change or introduce any activities in the 2019 period?
Changes planned
We are looking to establish:

A support group to provide people with haemoglobinopathies with an opportunity to be with others who have a common purpose and who are likely to understand their situation. Benefits of participating in a support group may include: Feeling less lonely, isolated or judged. Reducing distress, depression, anxiety or fatigue. Encouraging treatment compliance by explaining the importance of all parameters of health including lessening of incidences of comorbidities.
Main beneficiary
General community in Australia
Other beneficiaries
People with chronic illness (including terminal illness)

Annual report

Note: If you want to see the financial report or annual report that this charity has submitted, go back to Financials & Documents.

Human Resources

Human resources
  • Full time employees: 2
  • Part time employees: 3
  • Casual employees: 0
  • Full-time equivalent staff (FTE): 1.34
  • Estimated number of volunteers: 11

Financial Reporting

Charity's 2018 reporting period
1 July 2017 to 30 June 2018
Accounting method used in the 2018 reporting period

Income and Expenses

Income Statement summary

Donations and bequests
Revenue from providing goods or services
Revenue from government including grants
Revenue from investments
Other revenue/receipts
Total revenue/receipts
Other income (for example, gains)
Total income/receipts
Employee expenses/payments
Grants and donations made for use in Australia
Grants and donations made for use outside Australia
Other expenses/payments
Total expenses/payments
Net surplus/(deficit)

Balance Sheet Extract

Total assets
Total liabilities
Net assets/liabilites