Annual Information Statement 2013

Legal Name
HSP Research Foundation Incorporated

Section A: Charity Information

Charity has a financial year ending 30 June
Financial year ends
Information Unavailable
Charity size
Purposes of charity
Other: Formed in 2005 and is an incorporated, registered charity that facilitates and funds research to find a cure for HSP - an inherited, degenerative disease affecting mainly the legs, causing muscle weakness, spasticity and severely impairing walking. An early focus was to facilitate and fund the establishment of a reliable, affordable, nationally-available genetic testing service for HSP. HSP has also facilitated and provided funding support continuously since 2008 for the research program Towards a Cure for HSP, where adult stem cells are being studied as a model of the disease. The research has just entered a new phase in early 2013 Testing & Selecting Therapeutic Drug Candidates for treating HSP, with the aim of qualifying potential drug candidates that compensate for impaired cell functioning caused by HSP gene mutations to take into clinical trials. The Foundation is also the community hub for HSPers in Australia, providing support, awareness and education. The Foundation provid
Basic Religious Charity
Charity is part of an approved ACNC reporting group

Section B: Activities

Activities in the 2013 reporting period
Main activity
General activities
Description of charity’s activities and outcomes
The Foundation has sought funding from Australian philanthropic organisations, but primarily relies on donations from the Australian HSP community, by direct fundraising and encouraging people to hold events and fundraise on the Foundation's behalf.
Changing or introducing activities in the next reporting period
Beneficiaries helped by charity’s activities in the 2013 reporting period
People with disabilities

Section C: Resources and operating locations

Estimated number of unpaid volunteers who worked for the charity during the 2013 reporting period
  • Full time employees: 0
  • Part time employees: 0
  • Volunteers: 5
Where the charity operated during the 2013 reporting period
  • Australian Capital Territory
  • New South Wales
  • Northern Territory
  • Queensland
  • South Australia
  • Tasmania
  • Victoria

Section D: Reporting and regulatory obligations (This section is optional)

State or territory charity had non-corporate reporting obligations to
  • New South Wales
  • Queensland
  • South Australia
Approximate hours spent reporting by unpaid volunteers
Total hours spent reporting

Section E: Financial information provided voluntarily

2013 Financial report
Note: If you want to see the financial report or annual report that this charity has submitted, go back to Financials & Documents.