Annual Information Statement 2016
Australian Leukodystrophy Support Group Inc.
Section A: Charity Information
Other names charity is known by (such as trading name):
- Leukodystrophy Australia,
- , pre 2015 ALDS
Basic Religious Charity:
Section B: Activities
Did the charity operate in the 2016 reporting period?
Other health service delivery
- Advocacy and civic activities
- Emergency and relief
- Income support and maintenance
- Mental health and crisis intervention
Description of charity's activities and outcomes:
Supporting Our Families: Leukodystrophy Australia is aware of nearly 250 families or individuals affected by a leukodystrophy across Australia.Assistance: To families - newly diagnosed and beyond; emotional support; advocacy to assist connection with relevant services; equipment and aids; direct financial support where possible, through volunteers, counselling and peer support.Raising Awareness: As Leukodystrophy remains an under-diagnosed and misunderstood condition, Leukodystrophy Australia is committed to raising awareness of the condition. To do this, we have maintained a website and Facebook presence; we held a 20th Anniversary Conference; we continued to publish a quarterly Newsletter with a circulation of approximately 500; we support various fundraising events; and have provided guest speakers for presentations, where members of Leukodystrophy Australia have related their personal stories.Encouraging Research: Leukodystrophy Australia contributes to research into Leukodystrophy where funds and opportunity allow. We established a close connection with UNSWs Dr Matthias Klugmann (2014), whose work includes gene therapy research into the leukodystrophies; we provided placements for students undertaking relevant courses at various universities; and we initiated a Clinicians and Researcher Network (Leukodystrophy and Leukoencephalopathy) network, comprising doctors and scientists in 5 states.www.leuko.org.au
Will the charity change or introduce any activities in the 2017 period?
Where the charity conducted activities during the 2016 reporting period:
- Australian Capital Territory
- New South Wales
- Northern Territory
- South Australia
- Western Australia
Who was helped most by the charity's activities in the reporting period:
- Financially disadvantaged people
- People with chronic illness (including terminal illness)
- People with disabilities
Did the charity provide funded support and/or services to participants of the National Disability Insurance Scheme in the 2016 reporting period?
Does the charity intend to provide funded support and/or services to participants of the National Disability Insurance Scheme in the next reporting period?
Section C: Human Resources
- Part time employees: 2
- Estimated number of volunteers: 8
Section D: Finance
Accounting method used in the 2016 reporting period:
Charity's 2016 reporting period:
1 July 2015 to 30 June 2016
2016 Financial report:
Note: If you want to see the financial report or annual report that this charity has submitted, go back to Financials & Documents.
Income and Expenses
Income Statement summary
Donations and bequests:
All other revenue:
Other income (for example, gains):
Total gross income:
Grants and donations made for use in Australia:
Grants and donations made for use outside Australia:
Balance Sheet Extract