Overview

Charity details

ABN
Address
U 204 18-22 Dale St
Brookvale NSW 2100
Australia
Address For Service email
Website
Phone
Charity Size
Medium
Who the charity helps
Youth - 15 to under 25
People with disabilities
People with chronic illness (including terminal illness)
Families
Early childhood - aged under 6
Children - aged 6 to under 15
Adults - aged 65 and over
Adults - aged 25 to under 65
Date established
1989
Last reported
28 January 2021
Next report due
31 December 2021
Financial Year End
30/06

Summary of activities

Through our HelpLine we provided counselling support, information, referrals and advocacy for people who have Fragile X syndrome and related disorders and their families and carers. We ran Fragile X seminars, produced information resources about Fragile X, and facilitated access to specialist clinics. We raised public awareness of the importance of early diagnosis and early intervention, through media coverage and medical seminars.

Charity programs

Program name Classification
Fragile X HelpLine Genetic conditions and birth defects
Counselling Genetic conditions and birth defects
Fragile X Awareness Genetic conditions and birth defects
Education on Fragile X disorders Genetic conditions and birth defects

Financials & Documents

Annual reporting

Title Due Date Date received Download
Financial Report 2021 31 December 2021 Pending
Annual Information Statement 2021 31 December 2021 Not yet submitted
Financial Report 2020 31 January 2021 28 January 2021
Annual Information Statement 2020 31 January 2021 28 January 2021
Financial Report 2019 31 January 2020 8 November 2019
Annual Information Statement 2019 31 January 2020 8 November 2019
Financial Report 2018 31 March 2019 21 December 2018
Annual Information Statement 2018 31 March 2019 21 December 2018
Financial Report 2017 31 January 2018 30 November 2017
Annual Information Statement 2017 31 January 2018 30 November 2017
Financial Report 2016 31 January 2017 4 November 2016
Annual Information Statement 2016 31 January 2017 4 November 2016
Financial Report 2015 31 January 2016 2 November 2015
Annual Information Statement 2015 31 January 2016 2 November 2015
Financial Report 2014 31 January 2015 31 October 2014
Annual Information Statement 2014 31 January 2015 31 October 2014
Financial Report 2013 31 March 2014 31 October 2014
Annual Information Statement 2013 31 March 2014 31 October 2014

Documents

Title Date Reporting Year Download
Annual Report 8 November 2019 2019 Download
Annual Report 21 December 2018 2018 Download
Governing Document 2 November 2015 Download

History

The charity's subtype history

Purpose Start Date End Date
Public Benevolent Institution (PBI) 1 January 2014
Advancing health 1 January 2014
Advancing social or public welfare 1 January 2014
2012 Another purpose beneficial to the community 3 December 2012 31 December 2013
2012 Public benevolent institution 3 December 2012 31 December 2013

Registration status history

Effective Date Status
3 December 2012 Registered

Enforcement action history

There have been no enforcements for this charity.