Charity details

116 Rickard Road
Warrimoo NSW 2774
Address For Service email
Charity Size
Who the charity helps
People with disabilities
Date established
Last reported
15 November 2018
Next report due
31 March 2019
Financial Year End

Summary of activities

Purpose: The Foundation serves the interests and needs of people with Hereditary Spastic Paraplegias (HSPs) by: facilitating and funding research to find an effective treatment for the HSPs and as the hub of the HSP community, creating awareness and providing support, information and education. Activities: Over $300,000 of Foundation funding has been invested in pre-clinical investigations in 2017/18. The investigations include a dose modelling study and four biomarker studies, all of which are prerequisite to initiating a clinical drug trial to test the effectiveness of a potential treatment for HSP The Foundation provides very significant resources to the leadership, management and administration of the HSP research program, ranging from organising, planning, funding, logistics and personnel through to support for the development of technical documentation for clinicians, researchers, grant makers, regulators, suppliers and peer collaborators The Foundation attracted giving in 2017/18 of just over $1 million due to fundraising and other efforts that have established a reputation for reliability, trust, effectiveness and progress that has resulted in an HSP community favourably inclined to contribute The Foundation employs multiple communications media – website, email, phone calls and social media to continuously provide support, information and education to people with HSP that is best-in-class globally, thus helping develop and maintain an HSP community favourably inclined to the Foundation, its activities and services The Foundation achieves operational excellence through a focus on, and commitment to, being businesslike and professional in everything that we do.

Where the charity operates


Financials & Documents

Annual reporting

Title Due Date Date received Download
Financial Report 2018 31 March 2019 15 November 2018
Annual Information Statement 2018 31 March 2019 15 November 2018
Annual Information Statement 2017 31 January 2018 21 November 2017
Financial Report 2017 No due date 21 November 2017
Annual Information Statement 2016 31 January 2017 18 November 2016
Financial Report 2016 No due date 18 November 2016
Annual Information Statement 2015 31 January 2016 4 November 2015
Financial Report 2015 No due date 4 November 2015
Annual Information Statement 2014 31 January 2015 16 May 2015
Financial Report 2014 No due date Not required
Annual Information Statement 2013 31 March 2014 19 December 2013
Financial Report 2013 No due date Not required


Title Date Reporting Year Download
Annual Report 15 November 2018 2018 Download
Governing Document 21 June 2017 Download


Responsible People

The role of a 'Responsible Person' is an important one for registered charities. Generally, a charity's Responsible People are its board or committee members, or trustees.


The charity's subtype history

Purpose Start Date End Date
Institution whose principal activity is to promote the prevention or control of diseases in human beings (Health Promotion Charity)(HPC) 1 January 2014
Advancing health 1 January 2014
2012 Another purpose beneficial to the community 3 December 2012 31 December 2013
2012 Institution whose principal activity is to promote the prevention or control of diseases in human beings (HPC) 3 December 2012 31 December 2013

Registration status history

Effective Date Status
3 December 2012 Registered

Enforcement action history

There have been no enforcements for this charity.