Overview

Charity details

ABN
Address
2507 Lagoon Rd
Charlton NSW 2795
Australia
Address For Service email
Website
Phone
Charity Size
Small
Who the charity helps
Females
Families
Adults - aged 65 and over
Adults - aged 25 to under 65
Date established
1988
Last reported
3 September 2021
Next report due
31 December 2021
Financial Year End
30/06

Summary of activities

All 2020 face to face events were cancelled due to covid 19 • September 2020 Natalie Moon, member family in Victoria, chopped her locks to raise funds for 22q • October 2020 Participated in 22q and Boo and initiative by Children's Hospital Philadelphia for Halloween (Via ZOOM) • November 2020 Brejniak Family hosted a Bunnings BBQ to raise funds • February 2021 Maria Kamper and Charli Kamper presented to 200 employees of Roche Diagnostics about the lived experience of 22q11.2DS . Roche Diagnostics developed the Harmony NIPT and wanted to learn more about how the syndrome can affect people, so they can share experiences with potential families using NIPT • March 2021 the first annual Mothers Retreat was held. A facilitated weekend for mothers of children with 22q11.2DS • May 2020 Follow up online video conference for participants at the Mothers retreat with Dr Linda Campbell • May 2021 22q at the Zoo Sydney and Brisbane, both Face to Face events • June 2021 Awarded 2 x grants towards Dr Linda Campbells Care4Carers program • July 2021 Member Linda Orchard, has held a fundraiser and awareness campaign by shaving her head.

Charity programs

Program name Classification
22q Connect Health and medical research
22q Mothers Retreat and Follow-up Community mental healthcare

Where the charity operates

States
NSW

Financials & Documents

Annual reporting

Title Due Date Date received Download
Financial Report 2022 31 December 2022 Pending
Annual Information Statement 2022 31 December 2022 Not yet submitted
Financial Report 2021 31 December 2021 3 September 2021
Annual Information Statement 2021 31 December 2021 3 September 2021
Financial Report 2020 31 January 2021 21 September 2020
Annual Information Statement 2020 31 January 2021 21 September 2020
Financial Report 2019 31 January 2020 29 August 2019
Annual Information Statement 2019 31 January 2020 29 August 2019
Financial Report 2018 31 March 2019 13 March 2019
Annual Information Statement 2018 31 March 2019 13 March 2019
Annual Information Statement 2017 31 January 2018 11 January 2018
Financial Report 2017 No due date 11 January 2018
Annual Information Statement 2016 31 January 2017 9 September 2016
Financial Report 2016 No due date 9 September 2016
Annual Information Statement 2015 31 January 2016 2 March 2016
Financial Report 2015 No due date Not required
Annual Information Statement 2014 31 January 2015 2 March 2016
Financial Report 2014 No due date Not required
Annual Information Statement 2013 31 March 2014 21 May 2014
Financial Report 2013 No due date Not required

Documents

Title Date Reporting Year Download
Annual Report 3 September 2021 Download
Annual Report 15 September 2020 2019 Download
Governing Document 2 March 2016 Download

People

Responsible People

The role of a 'Responsible Person' is an important one for registered charities. Generally, a charity's Responsible People are its board or committee members, or trustees.

History

The charity's subtype history

Purpose Start Date End Date
Institution whose principal activity is to promote the prevention or control of diseases in human beings (Health Promotion Charity)(HPC) 1 January 2014
2012 Institution whose principal activity is to promote the prevention or control of diseases in human beings (HPC) 3 December 2012 31 December 2013
2012 Another purpose beneficial to the community 3 December 2012 31 December 2013

Registration status history

Effective Date Status
3 December 2012 Registered

Enforcement action history

There have been no enforcements for this charity.