The Australasian Mastocytosis Society
- Charity is registered
- Charity reporting is up to date
Overview
Charity details
ABN:
Address:
Po Box 865
Port Macquarie NSW 2444
AustraliaEmail:
Address For Service email:
Website:
Phone:
Charity Size:
Small
Who the charity helps:
Youth - 15 to under 25
Unemployed persons
People with chronic illness (including terminal illness)
People in rural/regional/remote communities
People from a culturally and linguistically diverse background
Males
Gay, lesbian, bisexual, transgender or intersex persons
Financially disadvantaged people
Females
Families
Early childhood - aged under 6
Children - aged 6 to under 15
Adults - aged 65 and over
Adults - aged 25 to under 65
Aboriginal and Torres Strait Islander people
Date established:
2012
Last reported:
21 February 2021
Financial Year End:
30/06
Summary of activities
During 2019 / 2020, TAMS provided support for patients with Mastocytosis and Mast Cell Activation Disorders and their families/ friends through an education conference held in Canberra with keynote speakers from the fields of immunology, dermatology and nutrition. Our Chair (on his own expense) attended (on invitation) the European Competency Network meeting of specialists and researchers focused on sharing new learning about Mastocytosis and MCAS. When Covid struck, we took our support online hosting monthly Zoom patient support meetings, we networked with other similar groups across the globe to create a stronger alliance for sharing knowledge and support and we prepared for our first patient survey to kickstart our goal of research into these rare health conditions. We continue to answer numerous calls and emails seeking direction for diagnosis and also for support.
Charity programs
| Program name | Classification | |
|---|---|---|
| Patient Education Conference | Immune system diseases | More information |
| Zoom Patient Support Meetings | Immune system diseases | More information |
Where the charity operates
Using the information on the Register
Information on the Charity Register has been provided to the ACNC by charities. If information is not shown, this may be because it has not yet been provided. The ACNC may also approve information be withheld from the Charity Register in certain circumstances. Read more about information on the Charity Register.
Financials & Documents
Annual reporting
Financial information and financial reports voluntarily provided by charities that aren't required to do so may be temporarily unavailable. If the charity voluntarily provided the information or reports in its Annual Information Statement, it will be available soon.
| Title | Due Date | Date received | Download |
|---|---|---|---|
| Financial Report 2022 | 31 December 2022 | Pending | — |
| Annual Information Statement 2022 | 31 December 2022 | Not yet submitted | — |
| Financial Report 2021 | 31 January 2022 | Pending | — |
| Annual Information Statement 2021 | 31 January 2022 | Not yet submitted | — |
| Financial Report 2020 | 31 January 2021 | 21 February 2021 | Download |
| Annual Information Statement 2020 | 31 January 2021 | 21 February 2021 | View AIS |
| Financial Report 2019 | 31 August 2020 | 16 May 2020 | Download |
| Annual Information Statement 2019 | 31 August 2020 | 16 May 2020 | View AIS |
People
Responsible People
The role of a 'Responsible Person' is an important one for registered charities. Generally, a charity's Responsible People are its board or committee members, or trustees.
History
The charity's subtype history
| Purpose | Start Date | End Date |
|---|---|---|
| Advancing education | 10 November 2017 | — |
| Advancing health | 10 November 2017 | — |
| Institution whose principal activity is to promote the prevention or control of diseases in human beings (Health Promotion Charity)(HPC) | 10 November 2017 | — |
Registration status history
| Effective Date | Status |
|---|---|
| 10 November 2017 | Registered |
Enforcement action history
There have been no enforcements for this charity.
