Overview

Charity details

ABN
Address
Po Box 865
Port Macquarie NSW 2444
Australia
Address For Service email
Phone
Charity Size
Small
Who the charity helps
People with chronic illness (including terminal illness)
Date established
2012
Last reported
16 May 2020
Next report due
31 August 2020
Financial Year End
30/06

Summary of activities

* Committee responded to multiple emails, phone calls and facebook enquiries and requests for information and support throughout the year * Held our bi-annual patient and carer education and support conference in Canberra with presentations from leading medical experts in September 2019. * A representative of our committee attended an international education forum on the rare disease (at own personal cost) to bring back new knowledge and data to share with Australian patients and to also strengthen networks with other advocacy and support groups internationally * we were key drivers in establishing advocacy and awareness through an international awareness day coordinating similar groups across the globe for the same condition.

Where the charity operates

States
VIC
TAS
NSW
QLD
WA
SA
ACT
Countries
New Zealand

Financials & Documents

Annual reporting

Title Due Date Date received Download
Financial Report 2021 31 December 2021 Pending
Annual Information Statement 2021 31 December 2021 Not yet submitted
Financial Report 2020 31 January 2021 Pending
Annual Information Statement 2020 31 January 2021 Not yet submitted
Financial Report 2019 31 August 2020 16 May 2020
Annual Information Statement 2019 31 August 2020 Overdue

Documents

Title Date Reporting Year Download
Annual Report 16 May 2020 2019 Download
Governing Document 6 January 2019 Download

History

The charity's subtype history

Purpose Start Date End Date
Advancing education 10 November 2017
Advancing health 10 November 2017
Institution whose principal activity is to promote the prevention or control of diseases in human beings (Health Promotion Charity)(HPC) 10 November 2017

Registration status history

Effective Date Status
10 November 2017 Registered

Enforcement action history

There have been no enforcements for this charity.