Cure For MND Foundation
- Charity is registered
- Charity reporting is up to date
Overview
Charity details
ABN:
Address:
Po Box 23390
Docklands VIC 8012
AustraliaEmail:
Address For Service email:
Website:
Phone:
Charity Size:
Large
Who the charity helps:
People with disabilities
People with chronic illness (including terminal illness)
Adults - aged 65 and over
Adults - aged 25 to under 65
Date established:
2014
Last reported:
29 December 2020
Financial Year End:
30/06
Summary of activities
FightMND is the largest independent funder of MND research, new drug development, and clinical trials in Australia. Since forming in 2014, FightMND has committed over $48.4 million into funding the best and brightest researchers in Australia and abroad in the pursuit of new treatments and ultimately a cure to this devastating disease. Our investments to date include;
• 11 Australian Clinical Trials giving MND patients across Australian access to try potential new treatments
• 17 Drug Development projects aimed at developing new treatments for MND
• FightMND High-throughput Drug Screening Program to help fast-track research discoveries through to clinical trial
• Precision Medicine Program to improve the targeting of treatments for patients
• Support for the Sporadic ALS Australian Systems Genomics Consortium (SALSA-SGC) at 8 sites across Australia
• 22 research grant-in-aids distributed to researchers across the country
• 3 FightMND Career Fellowships to support future leaders of MND research in Australia
• Angie Cunningham PhD Scholarship and Research Grant
Our other research initiatives include:
• financial support for the Australian MND Registry (AMNDR)
• on-going financial support for the Victorian Brain Bank
• FightMND Research Symposium
In addition to our research investments, FightMND is committed to ensuring that Australian’s diagnosed with the disease are enabled to live as independently as possible for as long as possible. To support this vision, over the last 4 years we have been the single largest funder of vital new assistive equipment for people living with the disease across the country. We have committed over $4.6 million for new equipment, directly improving the quality of life for Australian MND patients.
In 2020, FightMND committed $10.68M into MND research projects across Australia. Potential projects were reviewed and assessed by both national and international MND experts and an expert panel of MND clinicians and researchers to identify and support projects with the most promising potential to fast track a more effective therapy or cure. In 2020 the successful research projects include:
• 1 Clinical Trial;
• 7 Drug Development Projects, and
• 8 IMPACT Projects
Charity programs
Program name | Classification | |
---|---|---|
Precision Medicine Program to improve the targeting of treatments for patients | Motor neurone disease | More information |
Support for the Sporadic ALS Australian Systems Genomics Consortium (SALSA-SGC) | Motor neurone disease | More information |
High-throughput Drug Screening Program to help fast-track research discoveries through to clinical t | Motor neurone disease | More information |
Phase 1 Clinical Trial – Oral Monepantel | Motor neurone disease | More information |
Development Of A Tdp-43- Targeting Gene Therapy For MND | Motor neurone disease | More information |
Preclinical Development Of A Sod1 Genetic Therapy In Sporadic MND | Motor neurone disease | More information |
Modulating Actin Dynamics In MND As A Novel Therapeutic Approach | Motor neurone disease | More information |
Combination Therapy To Improve Cuatsm Outcomes In MND | Motor neurone disease | More information |
Developing Blood-Brain Barrier Penetrating Peptides | Motor neurone disease | More information |
Using Biomarkers To Address MND Heterogeneity And Improve Detection To Benefit Clinical Trials | Motor neurone disease | More information |
Using the information on the Register
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Financials & Documents
Annual reporting
Title | Due Date | Date received | Download |
---|---|---|---|
Financial Report 2021 | 31 December 2021 | Pending | — |
Annual Information Statement 2021 | 31 December 2021 | Not yet submitted | — |
Financial Report 2020 | 31 January 2021 | 29 December 2020 | Download |
Annual Information Statement 2020 | 31 January 2021 | 29 December 2020 | View AIS |
Financial Report 2019 | 31 January 2020 | 29 January 2020 | Download |
Annual Information Statement 2019 | 31 January 2020 | 29 January 2020 | View AIS |
Financial Report 2018 | 31 March 2019 | 19 December 2018 | Download |
Annual Information Statement 2018 | 31 March 2019 | 19 December 2018 | View AIS |
Financial Report 2017 | 31 January 2018 | 25 January 2018 | Download |
Annual Information Statement 2017 | 31 January 2018 | 25 January 2018 | View AIS |
Financial Report 2016 | 31 January 2017 | 23 December 2016 | Download |
Annual Information Statement 2016 | 31 January 2017 | 23 December 2016 | View AIS |
Financial Report 2015 | 31 January 2016 | 26 December 2015 | Download |
Annual Information Statement 2015 | 31 January 2016 | 26 December 2015 | View AIS |
Financial Report 2014 | No due date | Not required | — |
Annual Information Statement 2014 | No due date | Not required | — |
Financial Report 2013 | No due date | Not required | — |
Annual Information Statement 2013 | No due date | Not required | — |
Documents
Title | Date | Reporting Year | Download |
---|---|---|---|
Governing Document | 3 December 2014 | Download |
People
Responsible People
The role of a 'Responsible Person' is an important one for registered charities. Generally, a charity's Responsible People are its board or committee members, or trustees.
History
The charity's subtype history
Purpose | Start Date | End Date |
---|---|---|
Institution whose principal activity is to promote the prevention or control of diseases in human beings (Health Promotion Charity)(HPC) | 10 November 2014 | — |
Advancing health | 10 November 2014 | — |
Registration status history
Effective Date | Status |
---|---|
10 November 2014 | Registered |
Enforcement action history
There have been no enforcements for this charity.