Overview

Charity details

ABN
Address
Po Box 23390
Docklands VIC 8012
Australia
Address For Service email
Website
Phone
Charity Size
Large
Who the charity helps
People with disabilities
People with chronic illness (including terminal illness)
Adults - aged 65 and over
Adults - aged 25 to under 65
Date established
2014
Last reported
29 December 2020
Next report due
30 June 2022
Financial Year End
31/12

Summary of activities

FightMND is the largest independent funder of MND research, new drug development, and clinical trials in Australia. Since forming in 2014, FightMND has committed over $48.4 million into funding the best and brightest researchers in Australia and abroad in the pursuit of new treatments and ultimately a cure to this devastating disease. Our investments to date include; • 11 Australian Clinical Trials giving MND patients across Australian access to try potential new treatments • 17 Drug Development projects aimed at developing new treatments for MND • FightMND High-throughput Drug Screening Program to help fast-track research discoveries through to clinical trial • Precision Medicine Program to improve the targeting of treatments for patients • Support for the Sporadic ALS Australian Systems Genomics Consortium (SALSA-SGC) at 8 sites across Australia • 22 research grant-in-aids distributed to researchers across the country • 3 FightMND Career Fellowships to support future leaders of MND research in Australia • Angie Cunningham PhD Scholarship and Research Grant Our other research initiatives include: • financial support for the Australian MND Registry (AMNDR) • on-going financial support for the Victorian Brain Bank • FightMND Research Symposium In addition to our research investments, FightMND is committed to ensuring that Australian’s diagnosed with the disease are enabled to live as independently as possible for as long as possible. To support this vision, over the last 4 years we have been the single largest funder of vital new assistive equipment for people living with the disease across the country. We have committed over $4.6 million for new equipment, directly improving the quality of life for Australian MND patients. In 2020, FightMND committed $10.68M into MND research projects across Australia. Potential projects were reviewed and assessed by both national and international MND experts and an expert panel of MND clinicians and researchers to identify and support projects with the most promising potential to fast track a more effective therapy or cure. In 2020 the successful research projects include: • 1 Clinical Trial; • 7 Drug Development Projects, and • 8 IMPACT Projects

Charity programs

Program name Classification
Precision Medicine Program to improve the targeting of treatments for patients Motor neurone disease
Support for the Sporadic ALS Australian Systems Genomics Consortium (SALSA-SGC) Motor neurone disease
High-throughput Drug Screening Program to help fast-track research discoveries through to clinical t Motor neurone disease
Phase 1 Clinical Trial – Oral Monepantel Motor neurone disease
Development Of A Tdp-43- Targeting Gene Therapy For MND Motor neurone disease
Preclinical Development Of A Sod1 Genetic Therapy In Sporadic MND Motor neurone disease
Modulating Actin Dynamics In MND As A Novel Therapeutic Approach Motor neurone disease
Combination Therapy To Improve Cuatsm Outcomes In MND Motor neurone disease
Developing Blood-Brain Barrier Penetrating Peptides Motor neurone disease
Using Biomarkers To Address MND Heterogeneity And Improve Detection To Benefit Clinical Trials Motor neurone disease

Financials & Documents

Annual reporting

Title Due Date Date received Download
Financial Report 2022 30 June 2023 Pending
Annual Information Statement 2022 30 June 2023 Not yet submitted
Financial Report 2021 30 June 2022 Pending
Annual Information Statement 2021 30 June 2022 Not yet submitted
Financial Report 2020 31 January 2021 29 December 2020
Annual Information Statement 2020 31 January 2021 29 December 2020
Financial Report 2019 31 January 2020 29 January 2020
Annual Information Statement 2019 31 January 2020 29 January 2020
Financial Report 2018 31 March 2019 19 December 2018
Annual Information Statement 2018 31 March 2019 19 December 2018
Financial Report 2017 31 January 2018 25 January 2018
Annual Information Statement 2017 31 January 2018 25 January 2018
Financial Report 2016 31 January 2017 23 December 2016
Annual Information Statement 2016 31 January 2017 23 December 2016
Financial Report 2015 31 January 2016 26 December 2015
Annual Information Statement 2015 31 January 2016 26 December 2015
Financial Report 2014 No due date Not required
Annual Information Statement 2014 No due date Not required
Financial Report 2013 No due date Not required
Annual Information Statement 2013 No due date Not required

Documents

Title Date Reporting Year Download
Governing Document 3 December 2014 Download

History

The charity's subtype history

Purpose Start Date End Date
Institution whose principal activity is to promote the prevention or control of diseases in human beings (Health Promotion Charity)(HPC) 10 November 2014
Advancing health 10 November 2014

Registration status history

Effective Date Status
10 November 2014 Registered

Enforcement action history

There have been no enforcements for this charity.